How much health can you afford?

Australians tend to be rather contemptuous of the US health system. We brag about universal healthcare, and deride a system that only provides care to those who can afford it. But our universal healthcare is being steadily eroded, as people are pushed into private healthcare.

I have a minor heart condition. For the most part it’s not an issue, but it has escalated over the past week or so and I felt pretty ordinary this morning. I called the Nurse on Call advice line, described my history and my symptoms and she calmly told me that I needed to get myself to an Emergency department. Now. She said if I couldn’t get there within 45 minutes I should call an ambulance. She was quite forceful about it. Unnervingly so.

So I told my husband and we scuttled off to the nearest public hospital. Where I stood in a queue around 6 people deep and waited for 20 minutes before even telling anyone why I was there. They took my history, checked the oxygenation of my blood, and then told me to talk to the clerk and give my details, and then sit down and someone would come and get me to do an ECG.

So I did all that. And I sat. And I waited. And I looked at all the people who had been there before me, who weren’t being taken in. And I reminded myself that clearly the oxygenation of my blood must have been ok, or they’d have rushed, right? (Although they hadn’t actually told me what it was…)

So I sat.

And I waited.

After one and a half hours I asked them if they had any idea how long it would be. They said “hopefully not long, now that we’ve got some more staff on. But we don’t know how long it will be before you actually see a doctor.” They looked harassed.

So I sat.

And I waited.

Meanwhile I was getting dizzy, and nauseous, as well as very aware that my heart was doing funky things. My heart.

So I bailed. I called the two nearest private hospitals with emergency departments and asked about their queues. One had a queue of 2 (there’d been a “bit of a rush in the last half an hour” apparently). One had no queue at all. So we went there.

Two hours later I had been tested, treated, fed, and sent home. Not two hours of sitting in the waiting room. Two hours of active treatment, compassionate care, and several interactions with nurses and a doctor.

Had I not been able to afford the private hospital, I have no doubt I would still be waiting in that public hospital 8 hours later. Likely in a bed in the emergency ward by now, but maybe not even having seen a doctor.

I was lucky. I am fine. But that whole scenario could have ended very badly.

My bank account determined my level of care.

Apparently being financially secure means I am worth looking after.

No.

My bank account does not determine my intrinsic worth as a human being.

The quality of my healthcare should NEVER be determined by my ability to pay.

People are worthy of compassion. Quality healthcare. Timely healthcare. And dignity. All people. Bank account status just should never appear in this context. We already have an education system that allocates opportunity and resources based on wealth. And it is so many levels of wrong I can’t even begin to cover it. But we are now moving faster and faster towards a health system that does the same.

We have to stop. Now. Malcolm Turnbull with his millions is worth no more as a human being then a homeless woman without a penny to her name.

Money should not determine the worth of a human life. Not now. Not ever.

 

The expectation trap

I have come to realise that there are two types of people in the world. There are those who expect far more of others than they expect of themselves. And then there are the ones at risk of burnout: those who set a higher bar for themselves than they would ever dream of setting for someone else.

I’ve got nothing but contempt for the former, to be honest. I would never ask anything of anyone that I’m not willing to do myself. (Except for spider management, ok? I do expect somebody to deal with spiders, and it ain’t gonna be me. We all have our rubicons. Spiders are mine.)  But apart from spiders, I can’t see how you can reasonably expect anything that you’re not willing to give.

Going to expect students to do something? Learn it yourself. Going to demand punctuality? Be on time. Expect people to treat you with respect? That’s a two way street, sunshine.

I’ve worked with people who like to make themselves look good by trashing others. It’s catastrophically bad for an organisation, both in terms of morale and overall work quality.

I’ve also worked with people who focus quite deliberately on raising others up: building their self esteem, publicly acknowledging good work, and generally making a much bigger fuss about the achievements of everyone else than about their own work.

They are louder about success than about failure. They will help you learn from mistakes, but they will never, ever, make a big deal out of them.

These people are society’s anti-depressants. I count some as dear friends, and some as work colleagues, and they would probably never recognise themselves here, because they also tend to be breathtakingly humble.

This humility is endearing, but it’s also dangerous. It comes back to those expectations – those who accept fallibility in others are often brutally hard on it in themselves.

I find myself drawn these days to anything that contains compassion. Whether it’s fiction or non-fiction, art, work, or science, I look for the love, the compassion, and the beauty. Life has enough trauma, enough harshness, enough brutality. I have a massive nerd crush on Brian Cox because he speaks so passionately about the beauty and wondrous variation of all life, including mankind. In episode 1 of Forces of Nature, for example, he said, “we’re all made out of the same building blocks, but we’re all slightly & magnificently different because of the history of our construction.” In his extraordinary lyricality there is a huge amount of compassion. I can’t get enough of it.

It’s odd, though, that despite being irresistibly drawn to compassion, I am singularly challenged to apply it to myself. My class goes badly? I excoriate myself. Someone else’s class goes badly? I’ll empathise, point out mitigating factors, think about how the same problem could be avoided another time, and help them move on. For myself, there can’t be mitigating factors. Everything is my fault. I expect myself to be perfect, even though I would never ask it of anyone else.

“Do unto others as you would have done unto you” doesn’t go quite far enough, does it? For some the message “do unto yourself as you would do unto others” has a lot more significance. Compassion is a powerful and healing thing.

The really compelling argument for me is that the less compassionate I am to myself, the less compassion I have to spare for others. If I have spent the day brutalising myself for some perceived failing, when I get home to my kids I am likely to be impatient and grumpy with them. It also makes me a lot less resilient. When I’m being hard on myself I can’t cope with life being hard on me as well.

So I have decided to look up to my role models. To those awesome people who lift me up on the low days. The generous souls who are kind and compassionate to those around them. I’m going to ask myself what they would tell me. And I’m going to try to treat myself as I treat others. Maybe if I do that, I might just avoid burnout.

Judgement Day

Human beings are really good at making fast judgements, but not very good at making them accurate. Let’s face it, in an evolutionary sense running away from a potential sabre toothed tiger is almost always a good idea. Better to run away when it turns out not to be a tiger, than not to run away if it actually does have teeth, claws, and a big appetite.

But sometimes those snap judgements can land you in hot water. Like when you decide you can trust someone and turn out to be horribly wrong. Or when you assume the worst of someone based on a chance meeting on a bad day.

Most of us take the judgements of others to heart too, even when we know they’re not based on fact. When somebody talks you down endlessly, it’s pretty hard not to believe it. That can be countered by some positive feedback, but positive feedback isn’t always around right when you need it. We’re more inclined to complain, as a species, I think, than we are to praise. And the bad stuff is also much, much easier to believe. It has been suggested that the ideal ratio is 6 positive comments to 1 negative, and how often do we deliver that kind of ratio ourselves, much less hear it come back to us?

What fascinates me is the power that unfair judgements have to get under my skin. Even if they’re not public – say, sent in a grumpy email or made face to face – they sting. I feel a visceral need to correct them. To fight back. To find a way to somehow wipe my life free of this corrosive attack.

But lately I’ve been thinking about that. Because fighting back invariably leads to a whole new level of toxic interaction, so even if it is temporarily satisfying to lash out, it’s really not going to improve my life. And arguing, however calmly and carefully, with someone’s judgement of you is incredibly unlikely to produce a change in their opinion.

So what on earth can you do? Turning the other cheek may be the biblical solution, but having one cheek stinging and even bleeding already, I really don’t feel like offering the other up for the same treatment. There’s not much incentive to say “Oh yeah? YEAH? Well tell that to my other cheek!”

Maybe there’s a different way. Maybe what I need to think about is the sting itself.

One of the reasons I write is to form connections. When I wrote about Mum last week I got a lot of beautiful support from both friends and strangers. At work I was heading down to the tea room when a colleague called out to me. I stopped, and she caught up and gave me a huge hug. She knew something about me, from what I wrote, that she hadn’t known before, and it prompted her to reach out. It was a moment of beauty in a really tough week.

The interesting thing about those connections is that they can become support structures in the face of those unwanted judgements. I am my own harshest critic, so when others tear me down my first instinct is to agree, and to collapse into a pit of self-loathing. Now I take those moments of beauty and hold them up against the bad stuff.

I save any positive feedback I get at work. The lovely emails from students and their parents. The off-the-cuff comments that give me a lovely warm glow. They all go into my positive feedback file, which I then go and read when I need an antidote to negativity. And the moments of beauty like the responses to my blog – the hug on the stairs, the email from a friend, the comments on facebook – they are also things I can turn to, like a balm that relieves an insect bite, to take the sting out of judgements I know to be unjust.

It turns out that I don’t have to collapse under attack. If I can’t trust my own self-judgement, I can turn to the judgement of people I love, respect, and trust. I can ask myself “Is that what my loved ones would say?”

It’s not easy . When judgements are hurled at you like a knife, they do cut. But there are salves for those cuts. At those moments when we’re bleeding, it turns out we have a choice. We can keep opening the wounds, or we can choose to help them heal. After we stomp around a bit, shouting and swearing. Sometimes you have to scream and throw things before you can act like an adult.

Surrealism, dementia style

You know what they don’t tell you about dementia?

Well, actually, nearly everything. But chief among them is how incredibly surreal it can be. I was at a cafe with Mum today. And it was fine. I was showing her photos from our holiday. She seemed to recognise my daughter, who was hanging out with me today. And as we chatted she turned to me and said “You can do the maths. How long have we known each other?”

It doesn’t matter how often this kind of thing happens, it’s impossible to get used to it. I stared at her for a moment and she said “I mean, I know we’ve known each other for a long time. When did we meet? And where?”

All the dementia literature says not to burst the bubble. Just play along with their reality. So I said “Well, it was 44 years ago,” hoping she would let it go at that. She exclaimed over how long we had been friends and then said “So where did we meet?”

I wasn’t sure whether to burst out laughing or put my head on the table and howl, so I said “we met at the hospital,” thinking that perhaps she would twig. She looked puzzled and said “did I come to see you did I? That was nice of me.”

I agreed it was indeed nice of her, while my heart quietly shattered. But she hadn’t finished with me yet. “Well hang on, you were in hospital, how did we actually meet?” oh yes. Nice time to use logic, Mum.

“We were in hospital at the same time.”

“Wow. That’s amazing”

“Yes, yes, it certainly is. I am amazed.”

It’s hilarious, really. Except it punched out my heart. That’s surrealism for you, I guess.

Half an hour after I got home she called me to ask when she would see me, it’s been so long.

When you feel my heat
Look into my eyes
It’s where my demons hide
It’s where my demons hide
Don’t get too close
It’s dark inside
It’s where my demons hide
It’s where my demons hide

They say it’s what you make
I say it’s up to fate
It’s woven in my soul
I need to let you go

Your eyes, they shine so bright
I wanna save that light
I can’t escape this now
Unless you show me how

Demons, Imagine Dragons

It’s not like this is new. She has forgotten me before. But the human brain, pre-dementia, is surprisingly resilient. It bounces back to its base state whenever possible. And regardless of how fractured, how flawed my relationship with my Mum has been, the base state of my brain is heavily influenced by that most primal of relationships: parent to child.

And that relationship was like two ropes. One from her to me, one from me to her. God knows those ropes were sometimes more like barbed wire. Sometimes they were so tight it was painful, while at others they were so thin and loose as to be almost undetectable. Ultimately, though, they were always there. But now her rope to me is unraveling. In fact that’s probably a lie I’m telling myself even now. Face it, it has unraveled. Evaporated. Gone.

I don’t know why that hurts so much. Her remembering me was usually pretty traumatic. When Dad was still alive their “remembering” moments usually involved threats of legal action, or screaming down the phone. But I still feel shocked and sick every time.

She still knows she knows me. But she doesn’t know who I am. There is no doubt a day coming when even that last flash of recognition will be gone.

I spent the rest of the day doing what had to be done. I drove home. Did the shopping. And halfway back from the shops I suddenly sobbed hot, desperate tears. It will only get worse from here. And I’m not sure I can do this anymore.

 

When the going gets tough, the tough get huggy

There’s so much to be angry about these days. There are terrorists. There are people saying stupid things about terrorists. There are people saying stupid things about people who aren’t terrorists. There are people saying stupid things about people who probably weren’t terrorists before but are getting really cranky now. There are politicians saying stupid things about absolutely everybody, even themselves.

And then there are personal things, much closer to home, that really make you want to haul off and hit someone. Sometimes it feels like the world needs a damned good pummeling to teach it a lesson.

Yesterday, feeling miserably ill, I wound up shouting at my kids like a feral monster. And they went forth, no doubt, feeling angry and miserable. Maybe they passed it on, or maybe they didn’t, but the start of their day kinda sucked, and that must have all kinds of flow on effects. All because I was angry and miserable and shared it around.

We all have angry moments. And it feels good, no doubt about it, to lash out when you’re angry and hurting. But lashing out, in the end, leads to more lashing out.

And the one mistake you made was just enough.And that one mistake was, Boy, you talked too tough.Only takes a single bulletBring the fastest trigger down.

Heartbreak Kid, Icehouse.

A single bullet brings a bullet in return. A slap breeds another slap. Anger is like a virus, self-replicating until it overtakes the entire organism, killing it and moving onto the next host. Goodness knows we’ve been feeding the virus all kinds of nourishing fodder for quite some time now.

Pauline Hanson. Donald Trump. Even Tony Abbott. They’re all signs – vituperative, execrable signs – that we’re mad and we’re not gonna take it anymore.

And we shouldn’t. We shouldn’t take it anymore. But by slapping, hitting, even just shouting, all we’re doing is asking to be slapped, hit, and shouted at more.

So I propose we stop. We take a deep breath. And we ask if the world would actually like a hug.

Yep. It hurts. So many things hurt. Let’s not hurt even more. Instead let’s pause, open our arms, and say “Yep, it hurts. I hear you. Tough times, sure enough. Wanna hug?”

Shouting, slapping and shooting? I think we have an oversupply. But the world can always use more hugs.

 

 

Stranger Danger Danger

“Mummy, why did you talk to that lady? She’s a stranger.”

The question nailed me to my chair. I had been idly chatting with a fellow passenger in an airport, and my daughter found it difficult to reconcile this with what she has been told (not by us!) – “Never talk to strangers!

I always talk to strangers. I smile at people. I strike up conversations. And I have made personal, professional, and profound connections this way. When I was 15 I started writing to a complete stranger in Germany, and we just spent a week visiting him and his family, absolutely enveloped in love.

Some of my best friends now are people I just started talking to at random. In fact, if you think about it, everyone is a stranger at first. When you first start school. When you start a new job. When you move into a new neighbourhood. If you followed the “don’t talk to strangers” rule, it would be an extraordinarily isolated and lonely life.

But this is what we are supposed to be teaching our kids. That strangers are dangerous. That you should never talk to strangers. That strangers are scary.

Although the official messages, such as those you find on kid safety websites, have mostly shifted to identifying troublesome behaviours (such as asking kids to keep a secret from their parents) rather than avoiding strangers, apparently my 9 year old still knows that you don’t talk to strangers.

And where has this led us? This has led us to lifts where we rigidly face the front and don’t make eye contact. This has led us to neighbours who remain strangers to each other forever. This has led us to a distressing, and indeed hugely damaging, lack of community.

“Make sure that you are the kind of person who is positively contributing to your neighbourhood. Smile at everyone. Don’t ever stand at the bus stop with a stranger and not say ‘looks like rain’ or ‘why is the bus late?'” Hugh Mackay, DumboFeather Podcast, July 2016.

It’s true: Strangers can be dangerous. So can family. So can friends. But we would never teach our kids – or ourselves – to avoid family and friends. We are social creatures who need community in a very visceral way. And by teaching our children to fear the world, to believe that anyone they don’t know is dangerous to them, we are harming them profoundly.

We should be nurturing our kids’ ability to form connections, and to build networks. These are the skills that will keep them safe and make them fulfilled and productive adults. These are the skills that can even save our world and enable people to work together to solve our greatest problems. Yet we are actively teaching kids to repress their instinctive urge to talk to people, on the tiny chance that those people turn out to be dangerous.

I married a man who was once a stranger (very strange indeed). Strangers are just people we haven’t met yet. Some of them will hurt us. Some of them will love us. Some of them will save our lives. By closing ourselves off to strangers – building walls, not making eye contact, and preventing ourselves from connecting – we are killing ourselves emotionally.

Talking to strangers can, indeed, be dangerous. But not half as dangerous as never letting them in.

 

Trippy

I’ve learnt a lot in the past two weeks, which we spent staying with friends in Germany and France.

I learnt that the intensity and quality of a friendship can’t be measured in hours. I learnt what it is to be welcomed with open arms and loved with whole hearts.

I learnt that friendships conducted largely online can be a source of incredible comfort, humour, and strength, especially at odd hours of the day and night.

I learnt that it’s possible even for someone who hates cities to love Paris, and be swept away by her passion, intensity, and beauty. I learnt that no matter how many people tell you gluten free is going to be hard in Paris, it is possible to sit down at a random creperie and have a magnificent gluten free meal without any problems at all. And that this may cause unreasonable amounts of excited squealing.

I learnt that you can have Grandparents who are not related by blood, and I learnt that love laughs at language barriers.

I learnt that there are friendships that even 14 years of separation cannot bend or break.

I learnt that the brain is truly an extraordinary thing, but that three languages in one week is one too many (for me, at least).

French Alps

I learnt that life is too damned short and friendships too damned precious not to grab them with both hands.

I’ve learnt that hands, eyes, and smiles can speak volumes, and for the rest Google translate can provide some… interesting outcomes.

I learnt that Germans don’t know who The Doctor is. They kept asking me why I had a phone booth dangling from my necklace. I had to reconsider my plans to move there at that point…

I learnt that travelling with children is both infinitely more stressful and infinitely more rewarding than travelling alone, and also infinitely more likely to leave you quite gurf#fl!wardl# schl@eps.

I learnt that some friendships come and go but others will always be with me, one way or another, and these are the absolute core of my heart.

I learnt that it is possible to wholeheartedly embrace someone the first time you meet, and that this can last forever.

I learnt that into two short weeks you can cram a lifetime’s friendship.

I learnt that although there is a lot of evil and sadness in the world, there are also many people with huge and generous hearts.

I learnt that I am not very good at ceding control, but that sometimes it is worth it.

I learnt that the French have a rather more cavalier attitude to high speeds and tiny, narrow village roads than I am entirely comfortable with.

I learnt that the curative powers of ice cream should never be underestimated, nor should the restorative powers of renewed friendships.

I learnt that most of what my mother taught me of love was a lie. Friends can be relied on. Friendship can strike suddenly and last forever. And I am worthy of love.

I learnt that, although I already knew most of this stuff, being reminded of it in this way can be overwhelmingly transformative.

I hugged. I laughed. I loved. I cried. I learnt so much. Life will never be the same, and I am so very grateful.